Preparing for chemotherapy, especially if it’s your first time, can feel overwhelming and daunting. Packing a bag before your infusion appointment can help relieve some of that stress and ensure you’re comfortable and prepared. Ashley Marks, an oncology nurse navigator at Woman’s Hospital, answers frequently asked questions and shares her thoughts on what to expect during the infusion.
What is an oncology nurse navigator and how will it help me?
An oncology nurse navigator is a certified cancer care nurse who will act as your personal guide and advocate throughout your journey. Their role is to help you understand your diagnosis and treatment plan, explain potential side effects, coordinate care, and connect you to the right resources every step of the way.
At Woman’s, you are never alone. our goal is to support not only your medical needs, but your overall wellness. In addition to your primary care team, your oncology nurse will also connect you with resources such as dietitians, social workers, chaplains, palliative care nurse navigators, survivorship navigators, and a massage therapist who offers hand and foot massages several days a week.
What should I expect during transfusion or chemotherapy visits?
Upon arrival, the infusion staff will help you check in. Most visits start with lab work, followed by a quick visit with your doctor. From there, you’ll move to the infusion suite where you’ll have your own private infusion bay, complete with a reclining chair, a TV with headphones, and a comfortable chair for your guest. You will also receive a binder containing your personalized chemotherapy plan, information about your diagnosis, possible side effects, and guidance on managing these side effects at home.
Who can come with me during my infusion?
Because a strong support system can make a big difference in your infusion experience, patients can bring a designated support person at least 16 years old. We recommend choosing someone who is comforting to you and who can also listen carefully to the nurses’ instructions, as you may not absorb everything that is being shared in the moment.
Will I need to bring a designated driver?
Some treatments include pre-medication that can cause drowsiness, but others do not. Although each scheme varies, we recommend that you arrange for someone to drive you home from your first appointment. If you experience a transportation problem during your appointment, our social workers can help coordinate driving assistance if necessary.
What can I bring to my appointment?
Warm and comfortable clothing – Dress comfortably, but keep in mind that nurses will need access to your site. Button-down shirts, V-neck tops or loose-fitting clothes with easy-to-roll-up sleeves are ideal.
Comfort Items – Woman’s provides reclining chairs, pillows, blankets and access to a blanket heater. However, you are welcome to bring your own comfort items to make your infusion space feel more like home.
Snacks – Healthy snacks are available, but some patients prefer to bring their own. Avoid foods with strong odors, as some patients are more sensitive to odors than others.
Entertainment – ​​Having some form of entertainment can help pass the time and keep your mind off the treatment. Consider bringing:
- Pen, pencils or highlighters
- Books or notebooks
- Coloring books
- playing cards
- Laptop, iPad, Kindle or headphones
- Chargers for electronic devices
- Word searches or crosswords
What is not allowed on my date?
Diffused and strong odors are not allowed during your visit, so please ensure that neither you nor your guest are wearing strong perfumes or strongly scented laundry products. For patients benefiting from aromatherapy, small personal inhalers are available for purchase that do not penetrate the infusion suite.
How long do infusion appointments usually last?
Depending on your specific treatment, your appointment can last anywhere from 30 minutes to 6 hours.
Are there common side effects to chemotherapy?
Although modern medicine has helped control feelings of nausea, some patients may still feel a little uneasy. Some medications can also cause peripheral neuropathy, which is numbness or tingling in your fingers or toes. Bringing cool packs to these areas can help reduce the amount of chemotherapy reaching them, which can reduce tingling. If you use a cold cap to reduce hair loss, remember to bring your cap and all the essentials with you.
Remember, there is no such thing as a “perfect” chemo bag. Your needs may change as you become more familiar with your treatment routine. Start with what feels most comforting and practical and adjust as needed after your first few visits.
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